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SAS Shoes Review – Cozy Slide Sandal

I have been taking steroids in order to walk around without a mobility aid. Somehow I can get up at 6AM and do yoga, but after that I have difficulty moving. A big problem is that my legs and feet are as big as water balloons. They constantly itch and burn, and it’s hard to… Continue reading SAS Shoes Review – Cozy Slide Sandal

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Self-Care For Fibromyalgia

I've been off the internet for a while trying to figure out good ways to care for myself as I went through my latest pain flare and manic episode. With the help of my EMDR therapist, I came up with a daily routine, scheduled by the hour, for about 4 different tasks I could do,… Continue reading Self-Care For Fibromyalgia

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Why I Take Selfies

Today, I had to take steroids. For the third time this week I ended up walking around the house using my wedding cane. It was terrible but the steroids helped and I’m keeping my legs elevated. Another thing about today and the other days of the week I’ve used a mobility aid, whether I’ve left… Continue reading Why I Take Selfies

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A Bear Holding a Shark

I have never been a loyal person. For all of my life I've been the lone wolf type - and I happened to marry a lone wolf. It's not that I didn't try to be a team player, it's just that I always found myself ushered off to the side to fend for myself. And… Continue reading A Bear Holding a Shark

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Wedding Planning For Spoonies: Now With Actual Spoons! 🥄

It’s time for book talk! I’m back to almost 20,000 words after getting the book down to 16,000. That’s quite a feat for a week. And now I have this adorable cover! It probably is a bit cisgender - but I wanted the rainbow background for a reason. Please give me some #feedback for fun!… Continue reading Wedding Planning For Spoonies: Now With Actual Spoons! 🥄

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I am bad at social media

When I was growing up, friends always told me I should be a marketer. I’m trying my hand at it now, and I’m telling you, I am SO BAD at it. I’ve been sharing some of my articles at various places (Facebook, LinkedIn) and they barely get any traction. It’s horrible. The only platform I… Continue reading I am bad at social media

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Wedding Planning for Spoonies: Inspiration & tips for the chronically ill and disabled

My wedding planning book is going through a few iterations right now. I hope to still work with my editor after doing something really really stupid (in a pain flare I should never email people at night). The plan is to focus on mobility aid users and the chronically ill. It casts a wide net.… Continue reading Wedding Planning for Spoonies: Inspiration & tips for the chronically ill and disabled

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How to Survive a Night of Insomnia

Lately I’ve been getting up at 11pm, 1am, or most recently, 2am, and despite my best efforts, have been unable to fall back asleep. I’ve tried everything from meditation, medication, to alcohol, and I still can’t nod off. Unfortunately I tend to do stupid and impulsive things at night, especially just before dawn. I’ve compiled… Continue reading How to Survive a Night of Insomnia

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It’s OK

I wasn't sure what to write about today. I woke up at 2:00AM in extreme pain, but that's okay. It went away eventually and I fell back asleep. As I erroneously look forward in my life, ever playing the fortune teller, I see black clouds hanging ahead. But I know that this is false thinking,… Continue reading It’s OK