Everybody has an evil little voice in their head that tells them they’re a piece of shit, or that something nice that happened to them was really sinister, or a good friend is out to get them. Many people name their evil little voice. I never have, but lately I’ve been thinking “anaconda” or “Brenda.”Continue reading “Sometimes people are stupid, and that’s OK”
Today, I had to take steroids. For the third time this week I ended up walking around the house using my wedding cane. It was terrible but the steroids helped and I’m keeping my legs elevated. Another thing about today and the other days of the week I’ve used a mobility aid, whether I’ve leftContinue reading “Why I Take Selfies”
When I was engaged to my husband, I was in the process of being diagnosed with lupus and fibromyalgia. During what should have been my time of joy, I was ridiculously sick. Therefore my wedding, although I tended to it the best I could, did not have all the typical girl-things most brides obsess about.Continue reading “2 Traditionally Bridal Things I Didn’t Care About As A Chronically Ill Bride”
I notice a trend in my life, in other blogger’s lives, and in human beings in general. It’s of helplessness and hopelessness: being a victim of who you are and your circumstances.As for me, I admit I fall into the power trap as we all do at times. Sometimes I curse my pain and how I have no control. We may not have a say in the hands we’re dealt, but we can learn how to play them.
A few years ago, I came across a slew of articles against teaching kids the importance of self-confidence and self-worth. These articles were on reputable websites such as Huffington Post around 2011. At the time, I felt something acute pierce my chest, a sort of pallid, sudden sadness for these authors who blamed Disney andContinue reading “On Being Loving and Kind”
Every once in a while, a well-intentioned family member, a friend, or a medical professional will tell me I’m not fighting hard enough, that I’m not taking care of myself, et cetera.The opposite used to be true – I would receive compliments from my doctors for the presentations I would make each time I cameContinue reading “Taking Care of Yourself With Chronic Illness”
How to make pain flares less gruesome and more gorgeous.
I had my first EMDR session yesterday, and it went… badly. In EMDR one of the first things you do is create a safe space for yourself, and I could not visualize myself as I am in that space. I kept seeing the old me, the beautiful former model me, and I began to sob.Continue reading “Why Body Positivity is So Hard For Chronically Ill Women”
I follow the Memes for Jesus page. One time I actually messaged them and got no response. Recently I thought of a meme about PKs, or preachers kids. Often times in the comments of the Instagram page people seem to have the idea that the PK does whatever they want. That wasn’t my experience. MyContinue reading “Reflection”
The positives of living with a chronic illness.