Image by StockSnap from Pixabay Before I developed chronic pain, I had a host of mental health disorders. Two biggies were dissociation and anxiety. I would bump into people walking around in public, duck out of hallways to be met by a face too flustered to apologize (and not sure to apologize). Not to mention… Continue reading I Started Yoga School: My Longtime Yoga Teacher Training Goal Realized as a Spoonie 200 YTT Yoga & Ayurveda Center
Today, I had to take steroids. For the third time this week I ended up walking around the house using my wedding cane. It was terrible but the steroids helped and I’m keeping my legs elevated. Another thing about today and the other days of the week I’ve used a mobility aid, whether I’ve left… Continue reading Why I Take Selfies
It’s time for book talk! I’m back to almost 20,000 words after getting the book down to 16,000. That’s quite a feat for a week. And now I have this adorable cover! It probably is a bit cisgender - but I wanted the rainbow background for a reason. Please give me some #feedback for fun!… Continue reading Wedding Planning For Spoonies: Now With Actual Spoons! 🥄
When I was growing up, friends always told me I should be a marketer. I’m trying my hand at it now, and I’m telling you, I am SO BAD at it. I’ve been sharing some of my articles at various places (Facebook, LinkedIn) and they barely get any traction. It’s horrible. The only platform I… Continue reading I am bad at social media
My wedding planning book is going through a few iterations right now. I hope to still work with my editor after doing something really really stupid (in a pain flare I should never email people at night). The plan is to focus on mobility aid users and the chronically ill. It casts a wide net.… Continue reading Wedding Planning for Spoonies: Inspiration & tips for the chronically ill and disabled
Lately I’ve been getting up at 11pm, 1am, or most recently, 2am, and despite my best efforts, have been unable to fall back asleep. I’ve tried everything from meditation, medication, to alcohol, and I still can’t nod off. Unfortunately I tend to do stupid and impulsive things at night, especially just before dawn. I’ve compiled… Continue reading How to Survive a Night of Insomnia
Real Spoonie Wedding from Katherine of the Reluctant Spoonie: Romantic tale between her and her husband and a beautiful dress!
Jess was kind enough to go over her heartwarming wedding experience with me today. During these troubling times I know it's hard to carve out space for collaboration, so I am doubly thankful for her getting back to me with my standard 8 questions. I am hoping the Spoonie Bride Project will be a great… Continue reading Real Spoonie Weddings: Interview With Study in Fitness’ Jess! hypermobile Ehlers-Danlos Syndrome
I like to write songs, and from time to time I think I make a good one. This one hasn't been set to chords yet - and when it would be it'd be ukulele chords - but this is in 3/4 time and is a little indie pop/jazzy tone to it. Most songs I write… Continue reading Song: Get Tired of Me
Wedding planning can feel so lonely - especially when you have a chronic illness or disability - and I hope the Spoonie Bride Project helps alleviate that. Part of the project is to help vendors understand the needs of this base of their clientele. The 8 questions include the final, "What would you want a vendor to know?"